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Big Data Meets Privacy

Nathalie Holmes (Privacy Analytics, Inc.), Khaled El Emam (Children's Hospital of Eastern Ontario - Research Institute & University of Ottawa)
Data Liquidity Salon G
Workshop Please note: to attend, your registration must include Workshops on Wednesday.
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Vast amounts of health data are being generated, collected and linked from multiple sources. The “Big Data” age has presented an unprecedented opportunity for organizations to use this data for secondary purposes such as improving patient care and even creating new business models & revenue streams. However, much debate among consumers and privacy advocates has, and continues to take place,0 around the subject of Big Data. Do organizations have more information than they need? How can the data be used? What business value exists in the data? What risks exist with the data? Does the data need to be protected and how should it be protected?

Data custodians and privacy professionals are now faced with the challenge of ensuring that responsible privacy and security protocols are in place to allow the ethical use of sensitive, private data. A practical approach to protecting this sensitive information is the use of anonymization or data de-identification.

As they implement de-identification practices, guidance on best practices and what other organizations are doing can be valuable. In this session we will present the de-identification maturity model, which describes the five levels of de-identification practices that organizations typically go through. The maturity model will be described as well as case studies in applying it to benchmark de-identification practices and identify a roadmap to improve practices.

What you’ll take away:

• Overview of the risks and opportunities with Big Data
• Overview of a practical approach to anonymization or data de-identification
• Understand what a De-Identification Maturity Model is and why it is important

Photo of Nathalie Holmes

Nathalie Holmes

Privacy Analytics, Inc.

As Director of Business Development for Privacy Analytics, she has overall responsibility for setting and executing the sales strategy to drive revenue for the company. Nathalie has extensive experience in both the IT and health care fields having split her professional career almost equally between the two, giving her a unique perspective on both. She is also an Award winning author for her debut novel Anna’s Tears; and in 2012 was the recipient of a Royal Inspiration Award along with notable recipient The Honorable Lt. Gen (Retired) Romeo Dallaire, Canadian Senator.

Photo of Khaled El Emam

Khaled El Emam

Children's Hospital of Eastern Ontario - Research Institute & University of Ottawa

Dr. Khaled El Emam is an Associate Professor at the University of Ottawa, Faculty of Medicine, a senior investigator at the Children’s Hospital of Eastern Ontario Research Institute, and a Canada Research Chair in Electronic Health Information at the University of Ottawa. His main area of research is developing techniques for health data anonymization and secure disease surveillance for public health purposes. Previously Khaled was a Senior Research Officer at the National Research Council of Canada, and prior to that he was head of the Quantitative Methods Group at the Fraunhofer Institute in Kaiserslautern, Germany. He has co-founded two companies to commercialize the results of his research work. In 2003 and 2004, he was ranked as the top systems and software engineering scholar worldwide by the Journal of Systems and Software based on his research on measurement and quality evaluation and improvement, and ranked second in 2002 and 2005. He holds a Ph.D. from the Department of Electrical and Electronics, King’s College, at the University of London (UK).

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